Originally published on Mon December 2, 2013 10:07 am
By Jordan Rau
Credit Courtesy of Tambra Momi
Tambra Momi has been eagerly awaiting the promise of guaranteed health insurance.
Since 2011, she has battled Dercum's disease, a rare and painful condition in which noncancerous tumors sprout throughout her body, pressing against nerves.
Jobless and in a wheelchair, Momi needs nine different drugs, including one costing $380 a month, to control the pain and side effects. No insurer has been willing to cover her, she says, except a few that have taken her money and then refused to pay for her medications.
When high school junior Nora Huynh got her report card, she was devastated to see that she didn't get a perfect 4.0.
Nora "had a total meltdown, cried for hours," her mother, Jennie Huynh of Alameda, Calif., says. "I couldn't believe her reaction."
Nora is doing college-level work, her mother says, but many of her friends are taking enough advanced classes to boost their grade-point averages above 4.0. "It breaks my heart to see her upset when she's doing so awesome and going above and beyond."
Calling the improvements "night and day" from October, the Obama administration says it has met its goal of getting the troubled HealthCare.gov site working for a "vast majority" of users. But that's only part of a complex technology system that is designed to end with insurance companies providing coverage for millions of consumers.